So Now What The Hell Is Wrong With Julie?
See, here’s the thing. I LOVE pain. I mean, sure, I’ve never gotten a tattoo and just pierced my ears for the first time a few years ago but when it comes to finding body parts I need to get rid of, I’m a pro. Especially considering the fact that I’m allergic to all narcotics and ever some OTC like Motrin and Advil. Regular Tylenol and whatever synthetic they can find is all I’m allowed to have. THAT’S what I call a party.
It all started when I was young. I had a few minor procedures over the years that led to the infamous hysterectomy I’m looking forward to shutting up about, a breast reduction from a 36I to a 36D and gave birth to two kids – one naturally and one C-Section.
That hysterectomy led to triple pneumonia and a twelve hour blood transfusion. Good times. Good times.
I have NO IDEA what the fuck has happened to me this year but let me tell you what, me no likey.
I’m about to tell you the latest, most terrifying procedure I have to have done on March 9, 2010. The reasons I need this stem from a combination of shit that already existed combined with shit that happened while I was in the hospital or something like that.
I found out I was getting this operation last month and had the date set last week and I was told that this is one of the most painful procedures a person can have. Something that would make the pain I felt from my hysterectomy feel like it was a scratch on the knee (but I think those hurt, too, so whatever).
There’s only one reason I didn’t tell all of you this right away. I know I kept hinting toward it but I honestly was too afraid to tell you because I’m afraid I’ll get made fun of.
I am a talker. When I acknowledge it, I get either a laugh or hurtful remark, even if it’s not meant to be hurtful. I have been made fun of my entire life because I talk to much, and I know I do. I’ve even grown to hate the sound of my own voice and find myself embarrassed when I’m in a conversation or hosting The Wii Mommies radio show, because even if the other people involved want to talk, my mouth is running and I just can’t stop myself.
Well, the operation I have to have is a two-parter and it’s oral surgery. If you don’t read the actual details of it, you immediately laugh. I didn’t. I cried. I cried out of fear of everyone laughing, not fear of the pain I’ll be in. I honestly could care less about the pain, which should be fun to manage considering I’m allergic to narcotics.
I’m having two things done, a Submucosal minimally invasive lingual excision (S.M.I.L.E) and a Uvulopalatopharyngoplasty (YOU-view-low-PAL-at-oh-fair-ING-oh-plass-tee) (U.P.P.P).
The S.M.I.L.E procedure is performed under general anesthesia. The tongue base is infiltrated with 25 ml of saline, and the course of the lingual arteries is marked using a Doppler for guidance. An incision is made in the midline of the tongue, and the coblator is used to ablate tissue at the tongue base. Ablation is performed medially to the marked lingual arteries. The incision is left open, and heals by secondary intention. This allows for a greater degree of tongue base reduction than radiofrequency tongue base ablation, with less morbidity than the midline glossectomy.
Basically, I’m having 20% of the back of my tongue removed.
That’s where the laughing usually starts. I either get “talk too much” comments or comments related to it being payback for forcing people to listen to what I have to say.
I had no idea this was possible. This is the part that has nothing to do with the operation. My whole life, I’ve chewed on the sides of my tongue no matter what I do. You can see what I’m talking about if I showed you, it’s shredded on both sides and hurts CONSTANTLY. Since I didn’t realize there was such a thing as a person having a tongue that’s too big, I just assumed everyone had constant pain and bleeding, or maybe it was payment for me running my mouth too much.
The other reason for this and the U.P.P.P. thingy is because of the hormonal changes from the hysterectomy and the pneumonia that slapped me across the face immediately after. I don’t know much about it, I just know that suddenly, I snore. Like a man. A big man. I choke in my sleep and have apnea and am constantly exhausted, even though I take drugs for sleep (turns out I can take all drugs except the good ones – narcotics).
I don’t know shit about what’s going to happen except that I won’t be talking or eating solids for 4 weeks. While I’ll have a voice box, other things will be changing and talking and eating will be too painful. I’ve been told to expect my voice to change, dialect different and my ability to sing gone. That last part I don’t get, but I guess it has something to do with maybe my pitch changing so I’ll be off key or maybe all of the things they’re removing will make it so I can’t enunciate properly. I don’t know. All I know is I want to go out to karaoke every night from today until the 9th, I also know I won’t go.
The midline glossectomy and smile procedures allow for more resection, but also pose a greater risk to the hypoglossal nerve/lingual artery neurovascular bundle. There can be significant bleeding requiring neck exploration with ligation of vessels. There is also risk for airway edema, hematoma, abscess formation, and permanent hypoglossal injury. The Repose system and geniotubercle advancement, can cause patient discomfort if there is excess tension, and can cause mild aspiration that is temporary.
UPPP, is surgery to remove the uvula (the small piece of tissue that hangs at the back of the throat) and all or part of the soft palate (the soft part of the roof of the mouth in front of the uvula). When a laser is used, doctors call this surgery “LASUPPP” for short. The procedure is done to help stop snoring or sleep apnea. If you still have your tonsils, the doctor will remove them as well. After this operation, the throat tends to swell and close up. To maintain an airway, the surgeon may insert a tracheostomy tube in your throat through an incision in your neck. Alternatively, an endotracheal (ET) tube may be passed through your nose or mouth and down the throat. Once the swelling subsides, the tube is removed.
You might develop internal bleeding or get an infection. Blood clots could form and lodge in the lungs, making it difficult to breathe. However, medical personnel are always alert for such complications, and know how to remedy them.
So no, I’m not asking for sympathy (yet) but I’m asking that you all please refrain from making me feel like shit by cracking jokes about the amount I talk. I’m not saying you would, but people have even thinking I’d find it funny but I don’t. I’m the youngest of four children and the baby has to struggle for the attention. Apparently for me it wasn’t a struggle. From March 9th until April 6th I will not be talking. While I’ll be able to, apparently the constant vomiting and pain will make me not want to.
I heard I might sound different, look different, feel different. I might sleep better and my depression may improve. My mouth won’t hurt. I won’t snore. There are so many benefits to these procedures and I only need to suffer for four weeks. My plan is to take advantage of it to catch up on everything I fell behind on and hopefully build up a nice collection of stuff if I need it in the future but I’ve been advised there’d be a lot of sleeping and the pain radiates throughout the body, so I’m not sure if I’ll be tweeting this one, folks.
I thank the dear lord above that I have my hands. I speak better with them than with my voice and I know those who choose to read me do so because they love my voice. If I am able, I’ll spend that four weeks making sure I am heard.
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All I can say is, “DAMN, girl! You just can’t catch a break.”
I think you need to write an episode of House. You can’t make this shit up!
I will definitely be thinking of you and sending all those healthy vibes I can muster cuz you sure need them more than me!!!
.-= Michele McGraw´s last blog ..I’m So Sorry, I Have A Confession… =-.
Julie Reply:
February 27th, 2010 at 11:43 am
Thank you, beautiful. I’m sure you’ll be hearing a lot more from me now that I won’t be on the road going crazy. I love you!
Good God! I do not envy you, Julie. You go through hell again and again, and yet you are able to find humor in nearly everything. Good for you, girl. I wish you a quick recovery.
Julie Reply:
February 27th, 2010 at 11:44 am
Thank you so much your support makes it so much easier.
I had this done last year, in addition to having my tonsils out at the same time. I scared myself by reading crap on the internet in the weeks before. I’m not going go lie, yes it sucks bad for about 12 days. They give you some pretty good drugs though. I slept through about a week of my life and had my husband wake me up at med time and drank Ensure and occasionally had pudding or ramen for nourishment. If you stay ahead of the pain with the meds you’ll be fine. Set an alarm or have hubby help you. Good Luck!
.-= Laurie´s last blog ..Giveaway: Win SteamPotVille and help flight cancer =-.
Oh, and thought for sure I’d never taste things normally again. It took a few months, but my taste buds returned. I think you will feel better after a few weeks… four weeks is way longer than they told me. *hugs*
.-= Laurie´s last blog ..Giveaway: Win SteamPotVille and help flight cancer =-.
Julie! WTF girl you have gone through so much sh*t! I will DEFINITELY have you in my thoughts and I wish you a very fast and healthy/good recovery. Just get better fast and take it easy and only do what you can! Just focus on yourself!
Christine
.-= Christine´s last blog ..Weigh-in Wednesday – Ups and Downs =-.
I missed this post somehow, so thanks for pointing me to it. That is – craptastic. I had no idea a person’s tongue could be too big. How did they even figure that out?
Well, I look forward to a lot of typing!
.-= Keely´s last blog ..You could call it the When Angsty Renaissance FairsTurn Into Obscure Orgies Blog, or something. Though I’m sure that’s kind of a niche market. =-.
Sending you love, hugs and fast healing vibes! I hope all goes well, and you are feeling more like yourself again in no time!
You’ll get no laughs from me…I know what you’ve been through, and how scary it is to go through all of this.
WOW, that’s scary, not funny at all. Hang in there, this too shall pass. I had no idea that kind of procedure existed? The mouth heals fast though right? That’s what I have heard anyway.
By yourself a bell, or a blow-horn since you cant talk for 4 weeks. That way you have some means to get someones attention if needed.
I love reading your blog!
.-= Mrs. Marine´s last blog ..Aloha Friday #15 =-.
Good luck with this WHEN it happens. I’m so sorry you’re having to go thru both the operations and the wait!! Someday, when you feel better, I’d like to have a conversation with you about people making fun of how much you talk, and your struggle for attention being the youngest kid! I get all this so much! Sometimes it’s funny, moist times it pisses me off and hurts my feelings too! I feel your pain! Thanks for the updates……
I. Have. No. Words. I’d be upset too. XXOO
Julie you know you can overcome any obstacle. This is just one of those to test you. You will be fine and if you need anything you have my number.
Seriously stinks about the meds but surely they will have something to keep the pain down. I have heard of both of them and from what I have heard is it’s not as bad as it sounds. Now, I have never seen anyone go through it just hearsay but I am sure you will do fine.
.-= Tonoogle (Tonya)´s last blog ..Wordless Wednesday =-.
OMG Sweetie, I just want to hug you. Then I want to run away with you, keeping the dr’s away, while we go drink margs on some beach. We can just talk over each other, since I apparently talk too much, also.
This sounds horrid. I will tell you I’ve had major issues with my uvula (which, surprisingly, most people think is something down in my southern regions) – a few times a year, I’ll get sick – and my uvula will swell up. HUGELY. They always threaten to intubate me – but being a former paramedic, I outwit them. But when this happens, you cannot see the back of my throat – only this huge balloon. It feels gross, looks awful, and makes talking impossible.
I’m sure both procedures will help tremendously – it just sucks you can’t take the good meds, and the possible complications sound…yuck. I shudder. If you cannot take Tylenol stuff, ask if they think you can take straight vicodin. They can mix it specially for you, without the acetaminophen. You may have already asked, but it’s all I can think of.
I’m so sorry for all this – I had no idea you could even have this go on. No jokes from me – I can’t figure out why people would make jokes about this, except in a weak attempt to lighten the mood – and you will dominate my thoughts and prayers. Hang in there – I’m off to read the rest of your other post. I love ya – tongue, soft palate, uvula, or not.
xx
.-= Katherine´s last blog ..I’m Sorry – But Thank You =-.